The purpose of genetic testing is to allow for early detection, which in turn can lead to early intervention to prevent the onset of symptoms or minimize disease severity. Genetic testing has helped thousands of individuals and families prevent or prepare for hereditary diseases and make informed decisions about their healthcare. However, because of the physical and emotional implications associated with a genetic disease diagnosis, many people prefer not to know that they may be at risk. The Genetic Disease Foundation found that 63 percent of those surveyed did not know if they or someone in their family had a genetic disorder. In addition, the survey revealed that preferring to not know about their risk for a genetic condition ranked among the top three reasons for not undergoing genetic testing.

"Determining your personal risk for genetic disorders, or that of your child, is one of the best and most responsible ways of managing your family's health," said Dr. Desnick. "For that reason, it is essential that we educate ourselves about the long-term benefits of knowing your genetic makeup, and KnowYourGenes is a valuable and free resource from the Genetic Disease Foundation to help us do so."

KnowYourGenes: A New Easy-to-Understand Resource on Genes and Genetic Testing

In observance of World Rare Disease Day on February 28, 2010, the Genetic Disease Foundation is launching KnowYourGenes “ a new easy-to-understand resource for people who are planning a family, have a family member or friend with a genetic disease or have a personal interest in undergoing genetic testing.

"KnowYourGenes was created to address the lack of easy-to-understand information out there about genetic testing and the role genes play in your health," said Elisa Ross, President of the Genetic Disease Foundation. "GDF is proud to bring this resource to all those who want to take a preventive and proactive approach to their health and the health of their family."

In addition to providing helpful information on genetic diseases and testing, KnowYourGenes also includes a quiz to determine who should undergo genetic testing and where to find the nearest genetic testing location and personal genetic counselor.

SOURCE Genetic Disease Foundation